Showing posts with label Seizures. Show all posts
Showing posts with label Seizures. Show all posts

Friday, August 29, 2014

I nailed it! Oh, nevermind...

Went to sleep at 9:00 PM... Woke up at 10:45. So here I am, wide awake tonight, folks. My hair is a mess, my body is in pain and I couldn't sleep even if I was tired. My brain feels it is day time, so here I am. However, I will not be too negative about it as it is giving me some time to fill you all in on how I am doing as far as seizures, medications, and life in general. So here we go!!!


Seizures - Only had them this week that I had a cold. They were out of body for the most part, but it also did some sleep-walking ones. I have never sleep-walked in my life, and I had a nice bit tongue when I woke up. So yeah. But other than that they are well controlled for once.


Medication - Still praying that my Epileptologist will let me off of Onfi. It is a great drug, but definitely adds to my insomnia/over-sleeping issues that I need to find a way to control. I am wide awake at night, and then sleeping 12-14 hours a day. Onfi is a great drug, so don't take it wrong. My body simply can't handle it. Everyone is different.

I am being switched from Trileptol to a newer version of the Oxcarbazepine known as Aptiom. I believe I mentioned this drug before. If not, click here to learn more about it >>> http://www.Aptiom.com this drug is a perfected version of Oxcarbazepine, and is known to have less side effects. It was released just this last year. My doctor feels I may be more successful and may control seizures completely! 


Other Health/Post Brain Surgery Issues - Due to surgery, my hormones have gone haywire. My Testosterone is higher then it should be and my female hormones are lower. I have hair growing places that I could never mention, and it grows so thick that I feel like a wolf. I had a Mirena inserted/implanted today (IUD) to attempt and help with periods. Periods for me come whenever they'd like to, but are never on time. And that is IF they feel like arriving at all. Two a month, one tiny one a week, cramps for two months and no-show... You name it and that's how TOM acts.

My reading is still difficult. Haven't started classes due to this. Not sure what to do with my life except being a writer, as I wish to do... I can read short text messages or e-mails. But if it is more than 3 lines, I have Siri do the work for me. The letters still switch things up and my blind spot gets in the way. Very difficult to deal with. 

Especially since I tried to work at a restaurant. My brain forgets numbers easily along with names... Didn't go well. However, I got a job at H-E-B Grocery where I used to work as a CSA. So happy as they work wonderfully with the disabled. I am very blessed!!! So happy to start in two weeks!!!

Interest in artwork and blogging has returned. It seemed to go away during my first two months of Prozac. I felt so distanced from my true self that you just wouldn't imagine. But I am feeling more like myself lately and I am even working on some hospital baskets again. It took a lot to get that far, but I made it!!!


That's all the new things I can think of for now. Nothing crazier has happened. Pray I don't jinx myself!!! God bless and sweet dreams!!! I'm off to go work on some art.

Love,
EpilepsyBlogger


Thursday, January 30, 2014

Today's Doctor Visit


Sitting in the room waiting to see my Dr. Szabo. Just spoke to my amazing Epilepsy Nurse, Janice. Always makes me laugh, somehow. Everything sounds good. I had no reported seizures to tell her about aside from 3 little auras over a 4 month period, which is fantastic compared to the 100 seizures and endless auras a day before brain surgery! 

The only things that worry me are my Onfi. A fantastic medication that saves people who suffer from seizures in their sleep. Lessening chances of SUDEP (Sudden Unexplained Death in Epilepsy). This drug has caused tightening of my throat to the point where swallowing food is impossible without water... At least I think it's the pill's fault. We'll see.



I am also very worried about my ridiculous lack of sleep. It's throwing me off mentally and physically. Looks like I will have to sadly be put back on a higher dosage of Ambien for a while to avoid the seizures returning. After all, every aura so far has been due to lack of sleep. All occurred on days where I didn't sleep until 3-5:00 AM. 

My panic attacks are lessening, which is good. I definitely do not recommend acne medications to anyone who has Epilepsy. They mess with hormones and in turn cause your body more stress than it needs. However, I am glad I took the pill, as it helped me understand why I have had cold hands and feet since brain surgery. Basically my body's way of fighting depression an anxiety. Mini panic attacks that did not win!!! (At least until I took the acne meds lol!)


Check out my awesome rash! No idea what it is from, though. Possibly the Cedar trees. But I've honestly never had this before. It just hit me yesterday and it looks awful!!! It could also be some sort of skin yeast infection. My mum recently had this issue... Contagious?! 

Anyhow, I shall be off. I will write again after my follow up with my Psychologist, Dr. Velez,  this next week. Her appointment will be interesting, as usual. God bless and I wish you all a seizure-FREE weekend!!! 

Monday, January 6, 2014

It's Been Quite a While



It's been quite a while since I have written.  Since my brain surgery last February it has been difficult to process thoughts at a decent pace. Worse than that, it has been extremely difficult to read. I am still hardly able to do so and it has almost been a year of re-training.

However, I have come very far. Compared to before surgery, having 30 to 100+ seizures a day, I now have only had a handful. And I don't mean "per day"... I mean since surgery. Definitely an amazing blessing and that is for sure. Plus - my hair is growing back beautifully!!! 

I am now only taking Trileptal and Onfi for my seizures. I was taken off of Felbatol entirely - which was a challenge to do, but I did it! - and I will hopefully be coming off of Onfi in about 3 months. 

My Psychologist that works with my Epileptologist has decided to put me on Pristiq. I was not entirely happy about taking this drug at first. The thought of being stuck on more medications had me enraged. But when I started to take the pill, I honestly felt my happy emotions as clear as day for the first time since surgery. When prior to taking Pristiq, I constantly had mixed emotions or don't feel emotion at all with people I loved. 

I was able to get off of this medication for quite a while until about a month ago. My brain had major difficulty with depression out of nowhere. We aren't sure why, but it could be one of 3 things:

1) I was put on an acne medication that had side effects of serious depression. The doctor never told me this and I was not aware until I had been taking it a month (which is when the depression hit).

2) I came down with a bad stomach virus. This happened at the same time as the issue with acne meds. I am not a cold-catcher but this one germ was too powerful for my body to beat. I lost 17 lbs. of weight in a week and could hardly down water. I would get anxious and intensely sad just before I would puke or during the chills and sweating episodes.

3) My depression may simply be seasonal. It's been a cloudy season, and December hardly gave me any sunshine. Rainy days made me feel down. Days when it was too cold to go outside made me so anxious and depressed. All at once.


Anyhow, all three of these happened at literally the same time. So there really was no way to know for sure. My doctor have me a low dosage of Xanax to last me for 7 days until the flu bug cleared up. 

I have overcome a lot of my issues in many ways. From daily exercise to making art when emotions are difficult. Taking a nap to clear my mind, to great apps that help with anxiety and SAD (Seasonal Affective Disorder) which is also known as Seasonal Depression or "Winter Blues". Drinking delicious teas as I sit out in the sunshine for 30 minutes a day has been the best, by far.

Anyhow, it is 3:00 AM and I really should be in bed. Just wanted to update you all and let you know that I will be writing more and more. I am slowly becoming EB again. It just takes time and patience!!!



Wednesday, February 20, 2013

I Will Destroy Epilepsy for My Epilepsy Family



So the hospital called two more times. Now I am going in at 5:30 in the morning for surgery. I decided to stay awake, write one more short post, finish packing and thank you cards. Getting so exhausted that it's not even funny, but I'd rather go into surgery tired because I won't have time to be so nervous.

Cramps are coming in more and more by the minute, so I know my period is going to start pretty much any minute now. Not happy that I'll be getting my monthly gift in the hospital during brain surgery. I am actually rather upset... But maybe that's just my hormones making me cranky?



Just got off the phone with my sweetheart. It was so hard to hang up... You know, I love him with all of my heart. And over the last few weeks I have realized that his love for me has truly grown. The way he loves and protects me is just... Unbelievable. Especially for our age and distance apart. I wish he was back at home right now, but I am thankful simply to be with him. The Lord has spoiled me with such a sweetheart.

I started to cry on the phone with him from the fear that has finally kicked in 5 hours before my first surgery. I realized this is happening TODAY. No more days to count down to. I told Rafael "Thank you for staying by my side through this. Your love has kept me so strong when I just wanted to fall apart sometimes. You're my best friend and I couldn't have done this without you". He replied saying, "Anything for you my love." Then we said our classic form of I love you that we say to each other each day and night:

"I love you," I cried.

"I love you more," Rafael whispered.

I sobbed and replied "Never."

"Always and forever." he said, bringing a smile to my face.

The boy always knows how to calm my tears. I wonder sometimes if he's an angel in disguise. Anyhow, I had to hang up because I refuse to keep him from his sleep. He has an education to achieve and I will always make sure he gets all the rest he needs to do so. So I held back my tears and said goodnight.



I am having faith that our good Lord is going to bring me through this surgery. I won't lie to anyone - I am scared out of my mind! This is no foot surgery or appendix removal. It's a brain, and it's a big deal. I contemplated chickening out, but I did a lot of thinking and a lot of praying. After that long process I realized that Epilepsy will always be a battle, but the cure we find someday is going to rely on us to be brave and make choices that don't seem so attractive.

So my sweet Epilepsy family, I am doing this for all of you. For those of you fighting Epilepsy now, and those of you who will fight Epilepsy later in the future. I am getting this surgery to help show you all that you can do it too, and that you can find success. I am claiming my healing from the Lord, and rebuking any suffering.

Death has been eating away at my brain for quite a while now with Epilepsy and making me suffer tremendously, but with our army of prayer warriors and the good Lord's blessing of an amazing brain surgeon and Epileptologist, death's meal is about to be put to an END. I love you all, and just know you are all appreciated and loved by this blogger and advocate. I may not know you personally, but I have a love in my heart and a great understanding of your suffering and I want to help you achieve your Epilepsy Success.

So please stay tuned to the blog and/or Facebook pages. My family will be updating daily and I will as well if I have the energy or feel well enough. Also, keep me in your prayers because I truly need my prayer warriors right now. Thank you for the love and support, and I am going to show you all that overcoming Epilepsy is possible with faith, love, hope and a little bravery.

Matthew 17:20
"He replied, "Because you have so little faith. I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there' and it will move. Nothing will be impossible for you.""



See you all soon,
EpilepsyBlogger

P.S. - I have gotten comments and messages on Facebook regarding sending monetary donations and/or gifts to me. I was unable to reply to several due to privacy settings on Facebook. Therefore, if you would like to send a donation or gift, please e-mail MandyKrzywonski@EpilepsyBlogger.org for the mailing address.

Friday, February 15, 2013

6 Days - Someone Knock Me Out


I don't know what to feel today or what to write. It's becoming more real than ever. I'm mad at everything and everyone for no reason. I cry every time I'm alone. I've broken down on my mother twice in front of everyone. I just want to scream and get all the energy and anger out of my body. But, instead I just sit here because I am afraid to look crazy, and I write. For some reason it's easier to write my feelings than to show them or talk about them aloud.

I know I'm being snappy and I'm sorry. I'm just so upset. Not to mention that I can't rest and enjoy life because my brother and sisters don't cook or clean. I wish someone would do it for me. But then that makes me selfish. Maybe I am selfish.

My tia, nana, and cousin arrived from Michigan today. I'm so happy to see them but my heart and my mind won't let me show it. It was so embarrassing to cry in front of them. I'm usually so strong. "The EpilepsyBlogger". The girl who kicks Epilepsy's ass and never sheds a tear. Hah. Not anymore.

My mother told me I technically go in to the hospital on the 20th, so I have 5 days to "enjoy" life at home. Still haven't started my period so I'll have to just get used to the fact that I'll be bleeding from more than one place in the hospital. Sorry for the gross details, but it's just what's on my mind. God, I'm crying all over my iPad screen.

I almost wish I'd have a seizure tonight, simply to knock me out of this mess.

Goodnight,
EpilepsyBlogger

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EpilepsyBlogger's Women - Being a Mommy with Epilepsy ft. This Shaking Momma

Foreword

Hello everyone! It is my pleasure to present this awesome article to you, straight from a talented blogger (who also happens to be both a woman AND a mommy with Epilepsy)! Women with Epilepsy have a lot on their hands. (Sorry men, but we carry just a little more than you do!) We not only have tricky hormones, but we also have to take extra care when it comes to things like birth control, fertility, getting pregnant, carrying a child, giving birth to a child... AND, if that isn't enough, being a mother.

I will cut my intro short before it turns into it's own blog post. It is a pleasure to introduce Jessica, the "Shaking Momma," and her amazing guest article about pregnancy and Epilepsy. Be sure to comment with your thoughts and share as well! Thank you, Jessica for such a great post!

P.S. - I sure hope you'll be back! LOVE this article. Brought me tons of peace of mind about being a mother someday, which is my one and only dream. (Seriously lol!)

NOTE 2/15/2013: There WILL be a second article coming about the emotional side of pregnancy and Epilepsy! So keep your eyes out!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~


"Our last picture in front of our WA home"

           My name is Jessica. I’m 33 years old. I have two kids: Isabella is 7, Dimitri is 4, and one great husband, Val. I had my first seizure when I was 16 years old. My seizures were controlled with medication and only happened when I missed meds. I lived a very normal life - played sports, went to school, drove, did everything my teenage friends without epilepsy were doing! Next, I graduated from high school, moved onto college, met my future husband, graduated and got married.

Thursday, February 14, 2013

7 Days Until Surgery - Officially One Week



Today my brain surgery is officially only one week away.

7 days.

168 hours.

10,080 minutes.

604,800 seconds.

Great.

Monday, February 11, 2013

These Seizures Won't Give Me a Break, Break, Break...



Today is one more of those days filled with seizures... And if it wasn't seizures, it's been a massive headache that could knock out an elephant. Surprised I even felt well enough to make my family some homemade peanut butter cookies (photo) and sit down to give an update. But I assure you all, as soon as I'm done writing this, it's back to bed for EpilepsyBlogger.

I didn't get too much sleep last night due to a lot of slight simple partial seizures. These seizures are less frequent and not as normal to me as others, so they freaked me out like you wouldn't believe. I didn't run upstairs to scare the parents, and did my best to relax until they passed. Finally I slept around 3:00am and if I had to rate my sleep, I'd say about an 8 out of 10 stars. So not too bad.

10 Days Until Brain Surgery - New Bedroom



10 days until brain surgery. I swear, days pass so quickly it isn't even funny. The Ativan has made today a little less stressful as far as my mood goes, though. However, it doesn't have enough power to kill my seizures. I have had about 200. I lost count around 1:00pm at 112 seizures.

Saturday, February 9, 2013

12 Days Left with My Whole Brain



Not sure why, but everything is randomly getting stressful. As you can see, I had to cut my hair even shorter... Not really loving this hair at all. I feel and look like a guy. Hate to be negative, but that's all I see in the mirror. And I look identical to my brother. This is awful.

Thursday, November 8, 2012

"Dear Epilepsy" A Letter to the Criminal - Day 8 WEGO National Health Blog Month

Day 8 Nov. 8th WEGO National Health Blog Month
Prompt: Write a letter to your illness.

 


If you enjoy my blogs and articles, please nominate me! Only takes a second! CLICK HERE TO NOMINATE ME!!! #HAAwards #NHBPM

Dear Epilepsy,


I'm truly confused about where to even start with this letter. Honestly, if I met you in person I don't even know what I would say. I probably wouldn't say anything. I would just kill you and get you off of this earth so you can no longer torture or kill anyone. Saying that, I guess this is more like writing a letter to someone who killed you. I can say that I forgive you all I want, but I don't.

Who are you to think that you have the right to crawl into our bodies and take us over the way you do? No one gave you permission - But really, who would? You've taken beautiful memories and either ruined them by embarassing seizures, or stolen them completely through memory loss and brain damage. Now, it's true that no one should be embarassed by you. We didn't ask for you and you do this crap all on your own with no help from us. But people with you can't pretend like we aren't slightly embarrassed sometimes. I'll be the first to admit it.

What makes you think that it's okay to kill? Why do you have to make us live each day worrying about SUDEP or status epilepticus? I hardly ever sleep with a pillow these days in fear that I'll suffocate from one of the tens and twenties of seizures I have in my sleep every night. I go nowhere without my Ativan because I know you'll try to spring status epilepticus on me like you always do.

You didn't make me strong - I made myself strong on my own. You are simply what I stepped on to become who I am today. Therefore, I hate you with everything in me and I will not pretend like I don't. We all hate you, and we're coming for you. Hurting your feelings? Well, I don't care. I hope you feel depressed, insecure, embarrassed, scared and plain angry. Because all of us feel this constantly thanks to you.

You're probably firing up in my head right now, angry that I am writing this letter. I know you well and you seem to hate me most whenever I use a computer. So let me make this easier for you to understand; I am writing this letter simply to tell you to run, and run fast. Why? Because the rest of the world and I are coming to get you and make you a thing of the past. I want my great children to learn about you in school, but I want them to learn about the day you DIED. The day WE KILLED YOU. And that day is coming soon. So enjoy your sick, twisted fun while you still can because I am ripping you out of my head in a month and a half, and the rest of the world is going to banish you completely when we find the right poison.



Screw you,

Mandy Krzywonski


To KILL this criminal, Epilepsy, CLICK HERE AND DONATE TO HELP!!!

Wednesday, November 7, 2012

Drowning in Saltwater - Day 7 WEGO National Health Blog Month

Day 7 Nov. 7th - WEGO National Health Blog Month
Prompt: Redesign a hospital room


If you enjoy my blogs and articles, please nominate me! Only takes a second! CLICK HERE TO NOMINATE ME!!! #HAAwards #NHBPM


Tonight is a hard night. Well, technically "this morning," since it's already 3:00 in the morning. This January's brain surgery won't stay off of my mind. I promised myself that I'd do my best not to think about it too much at night so that I can actually rest, but the combination of my antibiotics and AED's are giving me some major insomnia... So I can't sleep and I can't help it.

I only wish that the crying would stop. These tears are all over my keyboard as I type this and it's making my discharge seizures flare up. And along with those, my complex partial seizures are flaring up too... They've been going insane this week as it is. Not to mention that harsh"crying headache" I always get.

I am just so scared. Yeah, the death rate is only 0.1% and the risk of stroke is 2%... But one cannot help but worry that they might be that 0.1% or 2%. Let's not forget how hospital rooms seem to just scream disaster into your mind. Maybe if the rooms were a bit more inviting I'd be less scared. Maybe just a little bit.

(See Stanford's Risks and Benefits of Surgery PART ONE and PART TWO for more information on the risks and benefits of Temporal Lobectomies for Epilepsy.)

For example, those darn beds. Do they absolutely have to feel like rocks or is that just a choice the hospital makes to save on cash? I mean, I hate to complain... But even with the crappy pillow that seems as if it is stuffed with nothing but leaves, the bed is the most uncomfortable thing I have ever slept on. It wouldn't kill the hospital to purchase some Tempur-Pedic mattress covers at the very least. That would be a gift from heaven for someone like me, who seems to live there sometimes.

And what about the plain colors of paint on the walls that make you feel like you're sitting in a funeral home? Is it too much to ask for some yellow paint - or at least some other bright color that doesn't tell my brain to feel depressed and plain pissed off? I would paint my hospital room a nice dandelion yellow if I had the chance to choose.


But the one thing that definitely bothers me the most is that I am always alone due to those crappy little bed/chair "things" next to my hospital bed that the hospital assumes my parents can comfortably sleep in. Those darn things make me thankful as can be for that rock-hard hospital bed I have to sleep in. No wonder my family leaves me in the hospital alone overnight. (Which, by the way, is when all the seizures conveniently decide to happen.)

I just roll my eyes as I watch my mother or father attempt to pull out the little makeshift "bed" - which is really just a leg rest - and try to get "comfortable". Within an hour or less they say "Nope, this is hurting my back. I can't do this tonight, I will go home and come back tomorrow." A few times they have been able to pull it off, but these past few visits were't one of those times. And do note, it isn't their fault. It's not that they leave me alone all the time. They do their very best to stay with me... But bad backs and crappy chairs can't pull sleepovers.

Everytime my parents say they "can't do this tonight" I just laugh because I am not supposed to cry, right? Being a 19 year old young lady, almost 20, I should be able to be on my own. But the hospital still scares me as much as a Native American burial ground when I know a Tonic-clonic is coming soon. I need my "mommy" and "daddy" there to let me know I am not dying when a seizure takes me into the dark abyss, and especially when I wake up from the seizure into the hell that it leaves for me. So when I laugh, I am truly just holding the crying in. I find myself finally crying once my parents have left, which magically brings that Tonic-clonic seizure on almost right away.

I always feel so silly when I call the house crying, begging for my parents to come back to the hospital. I feel like I am a little girl again, calling from my friend's house during a sleepover, begging my father to pick me up because her older brother won't stop freaking me out. They answer, half asleep. "Hey, Mandy, is everything okay? What's going on?" Doing their very best to stay concerned even though they are exhausted and filled with back pain from sitting in the hospital all day.

Part of me feels happy and relieved just to hear their voices, but the cranky side of Mandy is angry that one or the other left and I start to cry. I'd usually feel embarrassed about admitting this, but who am I kidding? I'm in the hospital getting an EEG. They rip you off of your anti-epileptic drugs, make you stay awake all night listening to other patients scream from the other rooms - so you're tired and frustrated as hell. What does anyone expect from us other than to go crazy?

"Please come back I'm scared to have a seizure by myself." And it isn't a lie, because I am scared. The discharge seizures, I can handle, no problem whatsoever. I can handle the complex partial seizures too even though they make me a little nauseated, unaware, and worried that a Tonic-clonic is coming. But the Tonic-clonics are scary and impossible to get through alone - aside from the pretty auras - and so unbelievably painful when I wake up.

I then hear my father cry a little, and my mother too. Not too much, but just a few tears and sniffles. "Honey, we can't come back. We already spent a lot on gas and we have to take the kids to school in the morning. But we'll be there tomorrow, don't worry. We'll bring you some cookies. Just relax and we'll be there soon. We are praying for you and we love you. Jesus will take care of you."

I start to cry because I am still angry and scared. As if cookies are supposed to make it all better or something. And for about two minutes they just listen to me cry because I won't hang up the phone. Whichever exhausted parent is currently on the phone at that point passes me to the other parent for a repeat of the same conversation with more crying on my end. We then say our goodnights and I cry the rest of the night until a seizure just takes over and shuts me up.

My last EEG was a great example of why seizures are so painful. After crying and feeling helpless for a good hour and a half, I finally calmed down and grabbed my cell phone to play some knock-off of Angry Birds. And within that first minute of calmly playing a game I had a seizure. I hardly remember any of the aura because it was one of the most intense seizures I think I can ever recall living through, and waking up was the hardest part. It always is.

Why is it so hard, you might ask? Well, because you wake up into the hell that Tonic-clonics really are. I guarantee people would stop being so dang scared of watching you shake and grind your teeth if they could personally feel how bad it hurts to wake up. The seizure itself isn't frightening because you're not awake to feel it. So waking up... Well, that's what they ought to really be scared of.

Intense pain from head to toe - So intense that I wanted to die. I begged the nurse to make it stop and I screamed so loud that I woke up half of the hallway. She kept kindly asking me to "Shhhh... You're waking up everyone who is asleep. Don't worry it's over. Don't worry." Everything smelled and tasted like blood, which is usual. You never realize this right away because it's like you're being born again, or something. For a good five minutes your brain just doesn't work or think. I just screamed, screamed, and screamed some more.


The pain just doesn't stop, either. The head is the main place you feel it, but everywhere hurts. This time it was so bad that once I could talk I quietly cried, actually begging the nurse to kill me so it would all just stop. "Kill me... Make it stop... Make... it stop... please... I want to just die already... Don't... Don't do this to me anymore." No lie, no exaggeration. I still remember the poor nurse's face as she heard this and I can't help but feel bad for what I asked of her. Her eyes watered and she shot me up with pain killers in attempt to stop my crying.

Another nurse came in and attempted to comfort me as they both removed all my clothing. I lost control of my bladder during the seizure. Urine completely soaking the mattress. Blood, urine, an oxygen mask and rubbing alcohol wipes - it all felt disgusting. I felt disgusting. Half drugged, I laid there, still crying. Although the pain was less intense, it was still there and still terrible.



I cried for my father. He's been the one I have always cried for since I was able to speak. My mother still wonders why I cry for her less often than my father. The answer is simple, to me, at least. If someone called me a name, or did something wrong to me when I was a little girl, I counted on him to be the strong man he is and get me the justice I deserved. And in this case, I was more wronged than I ever have been. Epilepsy is hurting me, and it hurts me in ways I can never fully explain.

One of the other nurses, obviously annoyed by my 19 year old self crying "Call... daddy... I need him... He needs to come help me..." dialed him up and let me cry to him on the phone and become his problem. "Where are you daddy? I had a seizure... I'm scared... Please come back..." but he couldn't. It was 4:00 in the morning, he was exhausted, and there was nowhere comfortable for him to sit or lay down. I guess I don't blame either of my parents, though. They didn't deserve to see how much I was literally covered in my own blood anyway. I don't think I have ever seen more of my blood in my life. That would only stress them more.

Anyway... I guess if I could change one thing out of all the things in my hospital rooms, I would put another bed for my mother or father. That way I don't have to feel so scared and alone. Hopefully the story I told you from this past year has helped you understand why those stupid "beds" are not beds at all. But I suppose that feeling scared and alone are just another two parts of this sick and twisted deal that they call "living with Epilepsy," eh? I just don't know if I'm ready to risk my life to get out of this mess...





Please share this article with friends and family to help find kind people willing to help donate for a cure to this terrible illness. To some it is only "Epilepsy," but for us it is an everyday life of pain and terror.

Amanda M. Krzywonski

Monday, November 5, 2012

Disaster Planning - Day 5 WEGO Health Blog Month

Day 5 Nov. 5th WEGO National Health Blog Month
BONUS PROMPT: Traveling with Epilepsy


If you enjoy my blogs and articles, please nominate me! Only takes a second! CLICK HERE TO NOMINATE ME!!! #HAAwards #NHBPM

          If you're working while you're at the beach, is it still really a "vacation"? I have always wondered that. One person traveling with Epilepsy requires the effort of many. Whether it's a bus or a plane, a car or a train, a ship or just walking down the street! It's never easy, and it's a 24 hour job. People with Epilepsy rarely get the chance to rest, because it is constant preparing for the next disaster.
          Not to sound negative, or anything... But that's just what we do. We have to.





My boyfriend, Rafael, recently left to A&M University to be in their Air Force ROTC. Since I am awaiting my brain surgery in January, that means I stay here patiently like a dog until he comes home every month or two for the weekend. However, about two months ago, I decided to take my first trip alone to go see him. He goes to school three and a half hours away, so it isn't too far if you drive. Having Epilepsy, you usually don't drive. I don't.

My father and mother are constantly working, and nobody (not even myself) trusts my sister to drive that far on her own. Texas is a state full of crazy drivers, and I don't mind saying it. Therefore, I had to take a Greyhound bus. So much fun! (Hah. Not.) The trip there was 12 hours long, and 8 hours back. How 3 hours and 30 minutes turned into half a day - I can't tell you. Greyhound really needs to figure out their track, though. Anyhow, the trip required delicate planning by my family, myself, and Rafael. Afterall, I would be totally alone for a total of 20 hours in strange cities at odd hours of the morning.

Therefore, this trip - lasting a total of 5 days - would take quite a bit of planning. Being a person with Epilepsy means you must be ready for anything and everything to go wrong...


What if I accidentally leave my medication at home?

What if I forget to take my medicine on time?

The bus stops twice, so that means I'll be awake all night - won't that much lack of sleep give me a seizure?

Who will I call if I need to go home early?

What if my cell phone dies while I am on the bus?

Mum and dad will worry themselves to death if I don't call every few hours...

Who do I know that could come get me if an emergency happens?

What will I do if I feel like I might have a seizure on the bus?

Who will take care of me if I have a seizure on the bus?

What if I end up in the hospital?


These are the types of worries and thoughts that run through your head as the person traveling with Epilepsy... But I assure you, these aren't even slightly near half of the worries you'd have. To somewhat calm these worries I have made a checklist of things to do and carry when I travel.

1. Research the area extra carefully - Look around online at your destination, and your stops along the way. What are the local hospitals? Where can you order your medication if you accidentally forgot it at home? The list of hospitals is good for me because I can get a good idea of where I'll be in case of an emergency. I usually copy and paste the addresses/numbers/website into a document on my mother's laptop so that she can look for it in case of an emergency and know were to find me. It's much faster than having to look up the destination after hearing where I am from some busy nurse in the ER. I use CVS Pharmacy, so I call ahead of time and ask if I can transfer prescriptions in case of an emergency. Some locations do not allow a transfer, which is why I call ahead.

2. Book your hotels accordingly - Don't spend too much on a room because you need extra cash in case of an emergency. This goes for all types of emergencies. Maybe you need to run to the drug store for some Pepto-Bismol, or maybe you forgot your Ativan and need to transfer your prescription to another pharmacy and pay for it. A friend of mine has a son and daughter with Epilepsy and always books hotels near hospitals to avoid any sort of delay in case of a seizure emergency. So that is another thing some may wish to keep in mind.

3. Prepare your wallet - Never travel unless you have more than enough cash. "Just enough" is not enough simply because things change, and things go wrong. That's what this article is about, right? Make sure you have insurance cards, credit cards, personal identification, and any other type of card/ID you may need with you. One of my most important rules is to ALWAYS, always, always carry a $20 bill (or more, that's fine) that you save specifically for emergencies. This way, if you forget or lose your credit card, run out of money, need some Tylenol from the store, or need to make an emergency phone call, you're covered! This special $20 bill has saved me at least 5 times in my life, and it is one of my most important travel rules.

4. Set reminders - When traveling alone or with family, I always set reminders on my cell phone and iPad (both) three times a day to remind me to take my medication. This last trip was off-the-clock (at odd hours of the morning) so 5:00pm felt more like 10:00pm, and 6:00am felt more like noon. Setting the alarms helped my body stay on track with medication, and kept my mind sharp for what time it really was. Missing doses of medication can cause seizures within a three hour window for me.

5. Medication checklist - I always make sure I have every medication with me when I travel. Even if it's one that I only use "sometimes" such as a pain killer or Ativan (emergency anticonvulsant). Since you always seem to need things when you don't have it, it's better to bring it along. As I mention in many of my blogs, I have Status Epilepticus during my Tonic-clonic seizures, and Ativan is absolutely necessary for every single Tonic-clonic to avoid death. So it is always on me! In my purse, pocket, luggage, family car, and at home! Also make sure that you have enough medication to last you a week more than you need. Layovers, broken tires, storms, etc. happen and you need to be prepared for your trip to last longer than you think.

6. Setting up an emergency plan - There must always be an emergency plan, especially when you travel alone. You want to talk to your family or loved ones and discuss what they will do if a seizure strikes (or some other emergency), how you will get back home, etc. Some good things to keep in mind are:

- Who will come to get you in case of an emergency? Make sure that person lets their boss know they may possibly need to leave if something happens.

- Make sure that your family knows your entire route. Where are all of your stops? What bus/plan/ship/etc. are you taking? What is your destination? Where is your hotel? What room are you staying in? What time are all of your stops and when do you leave? Have all of this written down before you leave anywhere.

- Update loved ones regularly. If you had a change of plans due to a layover, text your family and let them know you're stuck at the airport overnight.

- Medical Alert Gear is a must with Epilepsy. I prefer either ScanMed QR or Mediband Plus. Two wonderful companies with gear that can ensure you get correct treatment. When you have Epilepsy, it is always best to carry something that lets people know you have Epilepsy right away. Whether it's card around your neck that says "This person has Epilepsy" or a medical bracelet with "EPILEPSY" in bright red, bring it with you!

7. If you're sick, the trip is off .- When you have a cold you are more likely to have seizures too. The worst mistakes I have ever made involved going on vacation when I had what I thought to be a "tiny cold". The idiot teenager inside of me said "It's spring break! You'll get over it in a day or two!" It ended up with me vomiting in the hotel room and having seizures the whole trip. If you're sick, tell your aunt and uncle to make the bed in the guest room because you won't be accompanying mama and papa this time!

8. Make sure you have opportunity to rest. If you've been up all night, plan to sleep 6 hours when you arrive to your destination. You must, must, must make up for all lost sleep or your seizures will take you over when you least expect it.

9. Leave no loose ends. Start planning early (this means NO last minute vacations with the girls!!!) and plan well! Unless the trip is planned out from start to finish, it's probably not a good idea. If you think "Hmmm... Not really sure if I'll have cash for day #3, but I can figure that out later right?" then that should be a BIG RED FLAG that you need to just say no and stay home, or figure out a better way to spend.

10. Teach others around you what to do in case you have a seizure. This means strangers, too. Better make friends with that weird guy sitting next to you on the plane, because he might end up saving your life! Introduce yourself, shake their hands and let them know you have Epilepsy. Sometimes it's easier to type up a list of what to do, print it out, and hand it to them when you meet them.

11. Avoid being alone as much as possible... Especially in a strange place. You don't know how dangerous it is to have a seizure on your own until you've seen a man being robbed as he convulses on the ground at a bus station.

12. Keep identification and medication on you at all time. If you're a girl, make sure you have everything in your bag and take it everywhere with you. If you're a guy, it's harder since you don't carry purses. However, backbacks work just fine! It may be a tight situation where you can't have a bag at all times. If that's the case, get a miniature pill container and put about two doses of each of your medications inside and/or your emergency seizure medication (Ativan, Lorazepam, etc.) and don't forget your wallet!!! This way people know who you are if they find you having a seizure or unable to speak.

That's not the entire list of things I have to do when traveling, but those are some of the most important steps I must remember to take. It's never easy to travel with Epilepsy. However, after you have done it a few times you learn to deal the same way I have. You can still have fun and enjoy yourself, you just have to prepare for anything at all times. That's why I say "Disaster Planning," instead of "vacation planning"!

Sounds about right, eh?


ALSO - check out the fan pages for tons of cool stuff this month!!! This includes giveaways, cool facts to share with friends, fun Facebook gear to show your advocacy and/or support for others, and much, much more!!! And PLEASE - don't forget to send your awareness month photos to MandyKrzywonski@EpilepsyBlogger.org so you can be on the blog!!!


 
(EVERYTHING EPILEPSY!)


(For mothers, fathers, aunts, uncles,
grandmas, grandpas, nieces, nephews, step-fathers, step-mothers,
daughters, sons, step-daughters, step-sons, friends, best friends,
wives, husbands, couples, and so on! Even singles!!!)

(Hopeful words, videos, music, and more to brighten up your day!)


Loved ones of those with Epilepsy also welcomed.
Topics posted each week by Mandy (EpilepsyBlogger).
All ages!

God bless,
Mandy Krzywonski
(EpilepsyBlogger)

Friday, November 2, 2012

What's So Weird About My Epilepsy? - Day #2 WEGO National Health Blog Month

WEGO National Health Blog Month
Day #2 Nov. 2 - Write about the weirdest thing about your health.
 
If you enjoy my blogs and articles, please nominate me! Only takes a second! CLICK HERE TO NOMINATE ME!!! #HAAwards #NHBPM
 
 

Visual auras. Visual auras are just... weird. Why? Because they are absolutely beautiful. Yes, I said beautiful. No misprint or spelling error. I won't lie and say auras are not scary, because when you have one you know that a seizure is on its way. Therefore, auras are warning signs. However, not everyone has the pleasure of having any warnings at all.

Auras scream "Get somewhere safe NOW!" or "You're about to lose a chunk of your tongue!" Nonetheless, the beauty of them tends to sidetrack me from time to time. My Tonic Clonic auras are by far the most amazing. How odd and unfortunate is that? I believe it is my artistic mind that gives me this opinion, but it takes me weeks and sometimes months after the pain of a seizure to admit any of what I am writing at this moment to myself.




The visual auras that come before smaller seizures are pretty boring and annoying because I can hardly see through them, and to me they are unnecessary since I don't have anything to really worry about. I am not about to go unconscious, and I am not about to chew off my cheek tissue - so why the warning? Who knows... The picture above is what the smaller seizure auras look like as far as colors go. You can't see past them where the colors are, and they are just "stuck" there in your vision. My visual auras occur on the upper right hand area of my vision, but due to my scar tissue they seem to be moving toward the center of my vision.

The difference about my visual auras and the visual aura you see in the picture above is that mine also has a bunch of scattered text. I can never quite tell what it says, but it is memories of my old MySpace page. So I see bulletins and text with the MySpace logo. Other times I see pieces of a book or article I read earlier that day.

The color is also difference because it is split up into tiny shapes. There isn't just a big wad of color. Some days it is thousands of tiny rainbow squares, and sometimes circles. But truly, it really does vary. I remember for a year of my life it looked like shattered glass full of rainbow colors. I wish I could explain but it is so complicated. When the auras stop, the color breaks up like sand.

I also taste a taste and smell things while I see these visual auras. It tastes like copper (Am I the only one who put pennies in my mouth as a child?) and Windex. (Haven't we all accidentally gotten some of this in our mouth while we slaved and cleaned the windows for our mums?) The smell is pretty gross, because it smells like rubbing alcohol which I hate. And the smell is accompanied by a tingling feeling in my sinus area.

These smaller visual auras help me remember to relax. They seem to come without seizures a lot too, yet they show seizure activity, so my doctor also calls them "discharge seizures". When I have had a stressful day, done a lot of work, or I have not gotten enough rest, these auras are the first to let me know. I can easily tell them apart from the Tonic Clonic seizures, so I do not scream or anything. I usually just sit down on the ground and call for my sisters, brother, parents or boyfriend to come help me in case I fall. But I do not really panic.

Fingers painted with dark purple nail polish
and violet ribbons for Epilepsy Awareness Month,
along with a homemade Epilepsy bracelet!


NOTE: I do have a type of discharge seizure where the aura is in between the ones I just talked about, and the Tonic Clonic auras that I am about to describe. I get very confused and I have an odd type of seizure that involves me literally speaking backwards and mumbling. I will also yell for someone to help me and then I just hug them. These don't turn into Tonic Clonic seizures, but they do wear me out and make me feel very sick and tired afterward.

Tonic Clonic auras start with the same taste and smell and tingling that I described above. But they also involve this feeling that is similar to having a bloody nose. It's this feeling that your sinuses and nostrils are just leaking. Due to this my family oftens freaks out when I have the sniffles, as I find myself sniffling before a seizure. This makes having the flu a million times more fun!

This lasts for a good 5-10 seconds, and then comes the colors and the dizziness. So at this point I know that I have a good few seconds to scream as loud as I can to get the attention of my parents, and to get down on the ground and lay down somewhere where I cannot hurt myself. I used to have more like 20 seconds, but over time the seizures have started to come more quickly. The colors are more intense and solid, and sort of "twirl" instead of break apart like sand. It's similar to looking at a fan on the cieling that is on a low setting - you can see the blades moving slowly in a circular revolving motion. Now imagine that full of rainbow colors - It is just crazy to see, but beautiful when you really think about it. (That is after I get over the fear of having just had a Tonic Clonic a few days or weeks ago...)

The "fan" starts out tiny, like a quarter, and grows until it takes up all of my vision. As it grows, I see all sorts of things embedded in the colors. I can't always make out what it is, but I have seen many math equations and websites as I mentioned before. The most interesting part is what comes next. I see this one image, and that is a picture (that we actually have printed in an old photo album) of my old house in Colorado Springs, Colorado in the fall. I see it in front of me as if I am looking at it printed on a wall. Absolutely the weirdest thing I have ever experienced... Well, except for what comes next. (I know, "Oh, brother...")


No way?! That's ME!!!

After that image fades, all of my thoughts or anything that others around me say to me turns into (literally) text. The text moves across my vision left to right, just as if I am reading it off of the pages of a book!

So if I am thinking: "I am going to fall!"

I see: "I am going to fall!"

OR

If my father is holding me saying: "Everything is going to be okay, sweetie. It's alright."

I see: "Everything is going to be okay, sweetie. It's alright."

Now tell me, how "normal" does that sound to you? It's weird, right? I have only met one other person in my entire life who sees these things before a seizure. It just amazes me and makes me wonder how our brains are truly built. What does each section do, and what happens when that section has a seizure? Doesn't it just blow your entire mind to even try to understand? I know it blows mind...

After this has happened, the world goes black. I have severe Tonic Clonic seizures that last 5 to 20 minutes, and are often recurrant up to four times in one night without my regaining conscious. This is also known as Status Epilepticus - "a life-threatening condition in which the brain is in a state of persistent seizure. Definitions vary, but traditionally it is defined as one continuous, unremitting seizure lasting longer than 5 minutes, or recurrent seizures without regaining consciousness between seizures for greater than 5 minutes."

I don't know what I really look like during a severe Tonic Clonic seizure, but my parents have done their share of crying and explaining it to me. I jerk around, my eyes roll back, and blood drips out of my mouth due to the biting of my cheek and tongue. My lips turn blue and I have almost died at least 6 times I can personally remember. It isn't very funny at all, which is why I hate Tonic Clonic seizures. You never know how bad a seizure is going to be. Thank God for the visual auras. I like to call them "God's little warning signs" because I am often in the shower before one comes. I'd easily die there in the shower alone without my visual auras. So in a way, these weird things are truly blessings.

So... Do you want my auras? Too bad. Go get your own!

And please, please, please... Don't forget the toes!!!
My hands were just so shaky from the medication that it's
truly a miracle these toes and fingers came out okay!


ALSO - check out the fan pages for tons of cool stuff this month!!! This includes giveaways, cool facts to share with friends, fun Facebook gear to show your advocacy and/or support for others, and much, much more!!! And PLEASE - don't forget to send your awareness month photos to MandyKrzywonski@EpilepsyBlogger.org so you can be on the blog!!!


(EVERYTHING EPILEPSY!)


(For mothers, fathers, aunts, uncles,
grandmas, grandpas, nieces, nephews, step-fathers, step-mothers,
daughters, sons, step-daughters, step-sons, friends, best friends,
wives, husbands, couples, and so on! Even singles!!!)
 

(Hopeful words, videos, music, and more to brighten up your day!)
 
Loved ones of those with Epilepsy also welcomed.
Topics posted each week by Mandy (EpilepsyBlogger).
All ages!

God bless,
Mandy Krzywonski
(EpilepsyBlogger)

Sunday, September 2, 2012

AED's = ACNE - 25 Tips to Kill Acne Forever




There's no doubt about it and there's no way around it. Antiepileptic drugs and Epilepsy alone can cause a major amount of acne in even the oldest of adults. It isn't common, but it isn't uncommon either. You either do or you don't. You'd think the universe would outlaw a blemish to occur on the face of an 18 - 40 year old... But Epilepsy thinks otherwise... As usual.

Epilepsy itself screws with the hormones of anyone, anywhere. Male or female, any race, young or old. Hormones control many issues in which affect the skin in major ways. This is why you may experience frequent rashes, boils, weird unidentifiable bumps, acne, etc.

When you're on medication, things can get better or worse. Your medication could control your seizures, even out your hormones, and acne will then disappear. Or, your medication can add too many toxins to your body (in which come out through your skin in some cases) and disrupt your hormones even more due to uncontrolled seizures (which I know from unfortunate experience) leading to awful acne that wouldn't end until you stop taking the drug and find one that works... or develop a precise acne treatment system.

Sometimes, these breakouts - whether they be on the face, chest, back, legs, etc. - will only occur for a few weeks or sometimes a few months due to simply being introduced to a new medication, or taken off a medication in which you have been on for a long time. This happens because your body simply isn't used to this new state and is adjusting or re-adjusting. This is called "acneiform drug eruptions". PubMed.org says:

"Drug-induced acne is a specific subset of acne that usually has some specific features, namely a monomorphic pattern, an unusual location of the lesions beyond the seborrheic areas, an unusual age of onset, a resistance to conventional acne therapy and, of course, the notion of a recent drug introduction. Many drugs can be responsible for such a clinical pattern. Corticosteroids, neuropsychotherapeutic drugs, antituberculosis drugs, and immunomodulating molecules are the more classical drugs associated with induced acne. 

Recently, new drugs, mainly targeted therapy in the field of oncology, such as epidermal growth factor receptor inhibitors, have been associated with an increased frequency of this adverse effect. Disruption of the culprit drug is rarely mandatory in cases of drug-induced acne. Close cooperation between the dermatologist and medical staff in charge of the patient is an important challenge to achieve optimal management of the initial disease."
Epilepsy reminds me of one of those troublemakers I was forced to sit next to in high school. You know, the kids who get you in trouble because they're the ones talking when the teacher said to shut up? I remember getting my report cards and seeing behavioral marks - which I got totally grounded for every time - and it was never my fault. We get to deal with all the *joys* of Epilepsy, but we never once asked to!

I think out of all the side effects, acne pisses me off the most. Weight gain would be first, usually. But even if I lost weight, the acne is what is going to keep me from knowing I look my best. Especially since it is all over the most important part of my body - my face!




My acne is clustered around the left side of my face and my chin. My right side and forehead are literally clean as a whistle. I originally assumed it was due to me sleeping on that side. However, I've noticed that I don't sleep on that side of my face at all! So I have no idea what the deal is. The picture above is my face when my breakout began. Notice how swollen it looks, especially on the chin. A double chin I never even had until now, thanks to acne. It is also on my chest. You cant tell much, but in the area where the shadow hits my face was a thick area of acne where almost no white skin existed.

Thankfully, I am slowly, but surely managing to minimize and even get rid of (somewhat) my acne. It's funny how all I have had to do is make these little, tiny changes... Yet they make huge differences in the end! So, I thought I would share them with you. I know many others, of all ages, sexes, and races share this issue. After all, Epilepsy doesn't discriminate! A few of these tips are cool because I have never seen them anywhere else. I sort of got creative and made them up on my own in order to fix certain issues, and in the end they worked like a charm! So please, enjoy!

This picture is where I am now. The acne is evening sides of my face and is much less severe. Double chin due to swelling has disappeared, and so has most redness. Some holes in the skin are left over. I have counted three total, but they are sort of repairing themselves with moisturization and regular, gentle washing.



Alright - here we go!




1. Take care of pillows... They are the most important step because you spend 8 hours or more glued to them! You want to change your pillowcases every three days... All of them. But, not only is your pillowcase infected with germs, oils, etc... But your pillow, itself, is too.

Many people purchase new pillows every 6 months due to this fact. Since many pillows are basically flattened after putting in the washer machine - and either shrink from the dryer or come out smelling like crap - your best bet is to put a cover on the pillow underneath the pillowcase. This will lessen the germ/oil content in your pillow, and eliminate the transfer from pillow to pillowcase. In the end, you can keep that pillow forever, and kill your breakouts! There are a few options you have to do this:

~ Purchase a spillproof pillow cover. I have only seen these once and it was at Bed, Bath & Beyond. They were quite pricey, but in the end I assume it's worth the cost. You'll know you found the product if it feels a bit rubbery, and zips up around the pillow rather than sliding over it like a regular pillowcase.

~ Make one! Buy a shower curtain from Wal-Mart (the plastic type, roughly $6) and sew that material around your pillow. Trim the edges and cover with your usual pillowcase.

~ Simply cover the pillow with a trash bag, and then cover the pillow with your usual pillowcase. I prefer this because it is not only cheapest but comfier to me.

2. Drink more water. Water truly is important to flush toxins from your system, and being on medication means you need double what the average person requires. Try to drink at least 10 8 oz. glasses of water a day. I guarantee that this step alone will show a lot of improvement for your skin.




3. Find a gentle cleanser and avoid exfoliating products more than twice a week... Or altogether. My dermatologist let me know that many people make the mistake of using exfoliating products, or products with added medications, when all they needed was a Neutrogena Face Bar.

4. Wash ritualistically. Twice a day didnt work for me, but three was the magic number. Keep your washes as on-time as possible. Ex: If you washed on Monday at 8:00am, 12:00pm, and 7:00pm, continue that timing each and everyday.

5. Try washing directly after meals. A lot of acne breakouts can be due to food touching your mouth and hands. Therefore, washing directly after meals is very smart. Try to schedule your meals before the time you usually wash your face rather than adding various extra washes to your schedule - that will dry out your skin and just make things worse. Since most people are at work or school around their lunch time, make a purchase of facial cleansing wipes and use those at lunch. That way you don't have to get out the soap and scrub in a public restroom.




6. Avoid eating greasy foods, especially when you're on the go. If you know that you're not able to wash your face after lunch, stick to something fresh and healthy... Minus the grease. That way it isn't all over your hands and face. No one likes chin acne! Another great reason to diet!

7. Try your best not to oversleep too often. Since everyone sweats while they're sleeping, you're not only adding more grease to your pillow (yuck!) but you're also letting that grease sit on your face for an extended period of time. If you're absolutely too tired to get up and start your day, at least get up to wash your face on time, and then head back to dreamland!




8. If your face is extremely inflamed, skip out on makeup until swelling, redness, blistering and pain goes away. In the long run, makeup can cause your acne to get worse deeper down in the skin making blemishes reoccur constantly. Therefore, it's best to live by the rule of not using makeup on broken skin.

9. When using makeup, be sure to choose a makeup that is safe for people with acne. Neutrogena has a fantastic line of foundations specifically for people with acne. What else is cool? It even has Salicylic acid added to help clear the breakouts while you wear the products!


10. Never, never, NEVER sleep with your makeup on. Whether it be only eyeliner, or a full face of foundation, eye shadow, lipstick and mascara - take it off! When you let products like that sit on your face overnight you are literally asking for a breakout. Many girls cause their own breakouts and this is usually how.

12. Try lip stain plus a little lip balm instead of oily lip gloss. Breakouts specifically limited to the chin are usually caused by grease running down during meals, and grease from lip products!




13. If you play sports or workout, invest in a facial soap bar and take it with you to the locker room. Always wash your face after sports or workouts, even if it is out of line with your schedule. All that sweat cannot just sit on your face, and hot water alone will not remove it.

14. When washing your face, be sure to apply cleanser all over, including your neck. Don't avoid a spot because "it has no zits" or "it never breaks out". You will mess with your skin's natural balance and make breakouts worse. Treat every part of the face the same!

15. Where is your breakout located? If your acne is on one side of the face only, most of the time this means something! Not all people stand by this map, bur many in China do and several people in my famil do. To be honest, I didn't believe in this map until I really started to follow it! Let me walk you through theacne zones and let you in on some other reasons you may be breaking out in that area. Not all zones are acne zones, as you will see.



Zone 1 and 3 - These zones are on the sides of your forehead. Before we blame it all on how you eat and drink, do me a favor and look in the mirror right now. Is your hair touching that area at all? Do you find yourset setting your head in your hands a lot? Does your scalp itch causing you to touch those areas regularly? If you said yes to any of those questions, you probably need to stop touching those areas as well as doing the following. Pull your hair back with a headband, or keep it in a ponytail. Take two showers a day instead of one to reduce a greasy scalp. Not only are you in major need of some readjusting, but you also probably need to release major toxins and get some extra water intake. Try getting more exercise to sweat all that nasty stuff out of your pores, and make sure you are getting enough water sleep to ensure those workouts are not taking the life out of you. The magic number is "8". At least eight 8-oz. glasses of water a day (and believe me, that is literally the minimum. At max you need about 15 glasses, like I said.) and at least 8 hours of sleep (again, having Epilepsy means you need more... Shoot for 9 or 10 if you can).

Zone 2 - This spot is tricky. Again, you want to make sure your hair and hands stay away from this area. I find myself itching this spot constantly in the early fall and spring, when the grass starts blooming. I am severely allergic to it and that area itches more than any other. It also otches around cats. After so much itching, I usually get a huge breakout less than a week later that lasts anywhere from two weeks to a few months.

Zone 11, 12, and 13 - These zones are a powerful one for women. It can tell you a lot about hormones. Hormones are not only affected by AEDs, but also Epilepsy itself. If you are not only noticing acne, but also unusual hair growth (women), this can be a huge sign of a problem. Try seeing your OB/GYN about trying a low dose birth control pill to regulate hormones.

If you are a male or female, you may also want to think "Do I lean on my hands a lot in class?" The chin is a very commonly touched facial zone throughout the day, whether it be wiping away food or falling asleep on your arms in class. So keep it clean and DON'T touch!

Zone 14 - You'll often get breakouts here in summer months from the heat and sunburn. Wearing sunscreen is a major key in avoiding pimples on the neck over the summer - interesting right? Be sure to choose one that is non comodogenic (doesn't clog pores) and is oil-free. If you are noticing breakouts here in other months, you may need to do simple things like:

~ Washing that hoodie you have been wearing for a week. Dirt and oil builds on clothes and fabrics very easily!

~ Pick jewelry carefully. Note, you are noticing an allergic reaction and NOT acne. Cheap metals can cause reactions that sometimes resemble a bad acne breakout. It can however allow for infection and result in some acne.

~ Moisturize in the winter. Neck skin can get dry in the cold and crack, allowing for dirt to enter the skin, resulting in acne.

~ Always remember to wash your neck and chest. Women and men alike get acne between the breasts as sweat builds up in that area (mainly for women, between the cleavage - but sweat does stick to hair, and if you've got a hairy chest you probably have acne there too!)).


Zones 5, 7, and 9 - If you smoke or work around smoke, remember that it clogs pores. Consider quitting, staying away from it, etc. and wash your face after being near it. These areas are commonly sunburned and as I mentioned with the neck, need to be protected especially with a non-comodogenic sunscreen that is oil-free. Otherwise you'll get burns that lead to broken skin, which then allow dirt and grime to enter the skin causing acne breakouts.

16. Try sleeping on the other side of your face (if you can) to give that other cheek a rest.

17. Do NOT touch your face! Ever! And if you must, use a napkin or soft towel over your hand.




18. Don't scrub your face or use a towel to clean it. It breaks the skin and allows for more dirt to enter the skin, making infection and harder-to-kill acne breakouts. Use your hands, splash water in your fae, or wash your face in the shower using the running water only. Pat dry, don't rub.




19. Never pop your pimples. It is hard not to do, especially for those with anxiety or boredom in which they commonly pick at their skin, or for those who see white spots on their face unattractive. Pimples that are "ready to pop" (get crusty with a white bump on top) are actually pimples that are almost healed and are close to falling off on their own. Its better to let them pop on their own then to try and do it yourself. Why? Because doing so causes mini infections beneath the surface of the skin - which will cause a pimple to return in the same area over and over. Get rid if them once and for all by simply leaving them alone.

20. Stress doesn't help. It should be obvious, but it isn't to most. Stress not only triggers seizures, but it can make you break out faster than pouring a whole bottle of Canola oil on your face. Avoid it whenever possible in all ways. This means you should tell those people who are bothering you to hit the road, you need to get your eight hours of sleep a night, and you need to work out and relieve the tension in your body!

21. Sleep! I just mentioned this, but I'd like to explain. Sleep helps our body function properly. It reduces stress brought on when our body can't do what it is supposed to and it relaxes us naturally. Nobody likes to feel tired and groggy.




22. Working out - another repeat, I know. Working out not only relieves tension and leftover stress in the body, but it also flushes toxins from our body through our pores. This means less toxins building up inside to create acne! Be sure to wash afterward!

23. Put good in, get good out. Eat healthy foods that will benefit your skin. Eating lots of preservatives and grease is not going to help us. Eat natural foods from the ground and help your skin be glowing and vitamin-enriched, not pimple-covered.

24. Be healthy in the sun. Sun has been known for sunburns. As I mentioned, this breaks skin and any dirt that comes in contact with that broken skin is basically a recipe for acne that comes back over and over again. As long as you wear a good non-comodogenic and oil-free sunscreen, avoid sunburns, then the sun can only help! Some dermatologists even say UV rays are good for acne because they fry the infection and help it heal!

25. If these tips don't help over a period of three months, consider seeing a dermatologist about an acne medication to help clear things up. Over time, acne can lead to deep holes in the face that rarely go away. You deserve to feel attractive without loading on the makeup. NOTE: Still consider seeing a dermatologist before using these tips if you feel your acne is currently at an uncontrollable point.