Showing posts with label Active Living. Show all posts
Showing posts with label Active Living. Show all posts

Thursday, January 26, 2012

Married... with Epilepsy: Tiffany & Chris - Part One

Chris (Left) and Tiffany (Right)


By: Tiffany

Introduce yourselves!

My name is Tiffany Kairos. I’m married to Chris Kairos, a graphic designer and musician. I am the founder of The Epilepsy Network (TEN). To check out The Epilepsy Network (TEN), visit FACEBOOK: http://www.facebook.com/theepilepsynetwork and the WEBSITE: http://theepilepsynetwork.com

Sunday, January 22, 2012

Making the Choice to Homeschool Your Child

It's one of your worst nightmares as a parent who wants their child to be successful - Your child with Epilepsy says they can no longer go to school because they have too many seizures while they are there. This situation may seem all too convenient. It may seem like another way to get out of doing homework or get out of having to be up at 6:00am each morning. But in reality, one must think of the many, many legitimate reasons in which a child with Epilepsy should be homeschooled.

Monday, August 1, 2011

How to Live Well with Epilepsy - Part III - Talk About it.

We all need to admit it - Epilepsy bothers us at one point or another. Even myself, the "ultimate advocate" (in the words of my fans) gets knocked down every once in a while. Sometimes the seizures, doctor appointments, medications (not to mention switching medications, and hospitalization is too much to handle for anyone and there's really no way around it.

Sunday, July 31, 2011

Donate NOW to Mandy's Hero Fund

Dear Family, Friends, Fans and Followers,
I recently created a personal fund to help support Epilepsy Foundation. Please help us make a difference. Whatever you can give will be appreciated, and everything helps. No matter how large, or how small the fund, it all makes a difference. Also, please forward this to your family and friends as well. It will really help me get the word out.

Friday, July 29, 2011

How to Live Well with Epilepsy - Part II - Self Control and Lifestyle Changes


One thing that almost all people with Epilepsy struggle with is self control. We see others out doing things that we wish we could do. Now don't get me wrong - Epilepsy should not hold a person back from being who they want to be - However, the sad truth is that some things should be avoided by people with Epilepsy in order to stay healthy.
In order to practice self control, one must make certain lifestyle changes. Some changes are easier than others to make, but with practice and a good support system, these can be achieved. Here is my ultimate list of what I have found to be the most helpful lifestyle changes. So read on to learn what these changes can do for you and your struggle with Epilepsy.

Tuesday, July 26, 2011

How to Live Well with Epilepsy - Part I - Natural Treatments

Hey everyone! Here is a brand new part of my blog series that will be called How to Live Well with Epilepsy. I will be featuring ways to live well with Epilepsy while still dealing with this illness. I hope you all enjoy, and please, please, please leave feedback on my blogs. If there's any topics you would like me to touch on I would be more than happy to!

Today I want to touch on natural treatments. Now please note that I DO NOT recommend anyone stop their medications, or other treatments. Always ask a doctor before you make any treatment changes. These natural treatments were meant to be added on to your regular regimen to help enhance your current treatment.

The following are natural ways to relieve common side effects and symptoms of

Thursday, July 7, 2011

How the VNS Has Changed My Life as a Person with Epilepsy

When I started this blog, about a year and a half ago, my intentions were to tell others all about the VNS device. After a month or so, the VNS started to blend in to my daily life as if it weren't even there; leading me to totally forgetting to write about it.

Friday, June 25, 2010

Day #51 - No Grand Mal Yet! (And a Few Other Random Things)

I'm happy to let you all know that I have not had a grand mal yet. This is good news but this is also bad because I really feel that one could be coming at any moment. It's hard to tell because sometimes when your medicine is working well your seizures don't ever reach their full duration... so maybe my VNS is working? I haven't used my magnet much because by the time I pick it up the seizures are over or I'm in too much of a trance to reach for it. Either way, no grand mal yet, so I rejoice for that. However, I have continued to have some simple partial seizures but I don't mind those too much.

Lately I've been leading somewhat of an active life compared to this past year. I've started waking up earlier, and I'm able to stay awake longer. My weight has unfortunately stayed the same even though I've stopped snacking. I exercise daily which has seemed to help with my blood pressure and I no longer have that annoying ringing in my ears when my blood pressure rises.

At the moment I am babysitting a friend's huge golden retriever named Falco... he's just the funniest dog. He is very obedient which is awesome because our new puppy Rudy is the total opposite. By watching those two today I have notice that Rudy has been picking up a lot of behavior from Falco and I'm so glad to see that. My other dog Mia, a chihuahua, does not like being around either of them. She is very territorial. Rudy has been giving me a run for my money the last few months and his behavior is always horrible... hopefully Falco can show him a thing or two.

At the moment it's almost 98 degrees outside and even with our AC on 73 I'm sweating like a dog! I had a little "me time" outdoors today and got a tan which was very relaxing. The dogs were great about it and laid out in the sunshine right along side me. My favorite part of summer is getting a tan and going to the beach, which I will be doing in exactly 6 days!

Now that we're on that subject I just wanted to let you all know that I wont be posting for about two weeks while I'm gone. I got a lot of e-mails with ideas of what to post on and I'm just not sure because I got a lot of great ideas! As you bloggers can probably see, some of my followers don't actually own blogs of their own or even google accounts so they tend to e-mail me or twitter me more often. I would love to hear some ideas from my actual blogger followers. So far I got these ideas:

(By the way, your ideas don't necessarily have to be centered around Epilepsy. People with Epilepsy do most of the same things non-Epileptic people do, only with caution!)

- A post about some of my favorite products such as skin care, hair care, makeup, headache medicine, etc. This was one of my favorites because an off-blogger follower asked me to write a post about products that I use all the time, and why I like them so much.

- A post about my family. I get a lot of e-mails asking about how my family feels about my condition and if I don't do my next post on it, I'll do one eventually because my family is a very important part of my life.

- A post about ways to deal with anxiety. I added a few of the things I do in different posts but I've been asked by two people that suffer from occasional but serious anxiety (just like me) to do a post on things that I do to help escape the horrible feelings that anxiety can bring on a person.

- A post talking about different organizations and websites in the U.S. that are devoted to Epilepsy. This is also a great topic.

Feel free to vote on one of the topics above or leave me feedback on a topic that you would like to see. My e-mail is mandykrzywonski@yahoo.com if you would like to reply that way but I love to see comments on my blogs so I can see who is actually reading! The topic with the most votes will become the topic of my next blog.

Lastly, if you haven't already, please check out my FaceBook page and my Twitter! The twitter is brand new so there's not many posts yet but in about a week I plan to get on and start adding more stuff daily.

FaceBook: Your Epilepsy Blogger Page

Twitter: EpilepsyBlogger

Once again, thanks for all the feedback. My mind is blown because I never thought I would get this many viewers. It's just so awesome! God bless you all and have a great evening!

Your Epilepsy Blogger,
Mandy Krzywonski


This is a photo I found from an anonymous photographer of the oil spill that is ruining the lives of so many animals. This is something I care about very much because everything about the ocean means so much to me and this just shows the horrible job that some people do to take care of our earth. I understand it was somewhat of an accident but I encourage everyone to donate and do their part to clean up this huge mess.