Friday, October 22, 2010

I can finally sleep!

Hey everyone! Today I'm feeling a lot better than I've been feeling, so I made it a point to get online and give a little update while I have the time. As you all know I made a big switch from one of my medications to another one. (Vimpat to Felbatol). Basically the withdrawals were horrible (they are still a little bad actually...). I had extreme anxiety attacks, tremor, nausea, vomiting, loss of appetite, migraine, and probably the worst case of insomnia that even I have heard of. The vomiting was crazy... I always thought that the term "projectile vomiting" was something that was only in movies until I got off of Vimpat. I know this is totally TMI, but I literally threw up "at" my wall. Thankfully we had water resistant paint in the bathroom and I was able to clean it up. I was used to throwing up almost once daily while on Vimpat, but this vomiting was several times a day and just horrific. I thought I would suffocate or choke because there was no letting up.

The nausea and loss of appetite is still apparent. I lost 10 lbs, which I would imagine was all water-weight since I can't tell except that my pants are a little loose and my face is less puffy. I have actually had to set an alarm on my phone to remind myself to eat 6 times a day or else I literally forget to eat because I have no appetite for food whatsoever. I have had to also make myself eat some sort of meat once a day because I have been looking almost green/gray in the face. Food pretty much tastes like cardboard to me now, and it's depressing because food is a great passion to me.

The insomnia was the worst side effect of them all. I got 3 hours of sleep at the most each night. This led to me being extremely exhausted, both physically and mentally. I had panic attacks because I couldn't sleep and I felt like I was going completely out of my mind. I started to almost dream while I was awake, which is by far the weirdest thing I have ever experienced... okay, maybe it wasn't the weirdest. But it was definitely crazy. The lack of sleep led to me having 6 of the more serious seizures on two different occasions. I was almost thankful for this because I was able to be tranquilized, and I slept for 2 days straight. I finally got my sleeping pattern under control after forcing myself awake for entire days at a time.

My visual seizures have gone from hundreds to about ten a day, however they are much longer. They last anywhere from a minute to sometimes 5 minutes. If any of you readers are new, I consider auras and visual seizures two different things. Auras for me are when I get weird tastes in my mouth and see colors. The visual seizures are a little more complex and involve hallucinations along with symptoms of a simple-partial seizure. My auras have increased a lot. Throughout the day I often get sensations in my sinus area that are a bit tingly, and a windex type of taste. I have also had an abundance of absence seizures and I have literally been running into walls and I fell out of the shower again. I think I have also been having the type of seizures where you start randomly walking around, but I can't confirm this because no one sees me. I think this because sometimes before I run into a wall I wasn't actually walking anywhere, I would just be standing.

I decided that since I have been this ill, I needed to quit my job. I didn't quit completely, but I am going on a medical LOA (leave of absence) until May, when school is over. This way I can rest and focus on getting better. I am actually really sad about this because I love my job so much and it was my last way to socialize since I had to drop out of school and start on home schooling. I guess that work can wait a while though. I'm a little angry because I have a stupid $200 bill that I need to pay off and I have like $65 sitting in my account at the moment. Hopefully I can find some way to pay that bill off before I start ruining my credit.

After all this bad news, I do have a little good news. At least I think so. When I get those auras, that usually means a Grand Mal is on its way. Every time I start having auras I have been using my magnet and they literally stop for a good period of time. I would call this a bit of success since I haven't had an actual Grand Mal yet. Just trying to be positive, I guess.

Blegh! Well I guess I'm in a bit of a rut but I'm trying to get better as fast as I can. Every time I complain I think about a little girl I saw in my doctor's office who was in a wheelchair and headgear because of her seizures. She had a little tiara glued to the top of her headgear and she just had the biggest smile. It just makes me feel so weak for saying that I don't feel good. Somebody always has it worse, and a lot of the time those ones are the strongest. I mean I don't want to overestimate the health that I have because it isn't wonderful, but I am blessed to be able to walk around without headgear.

Anyway, I have to go give my puppy a bath, submit some homework and get ready to pack up and stay with my cousins this weekend. We are getting tile installed in our home so I need somewhere to rest without the noise. I hope you all have a great weekend and I wish you the best of health. God bless!

2 comments:

  1. Hi Amanda! Thank you for sharing your story. I was diagnosed with epilepsy less than a year ago and am still trying to find the right combination of medications (and right neurologist) to get my seizures under control. I've added your blog to my blogroll. I hope that's ok! Alyson

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  2. Thank you for following me, Alyson. I am sorry to hear that you have been diagnosed with Epilepsy, but I am sure you will find a medication or some other type of treatment to somewhat control or even get rid of your epilepsy completely. I will keep you in my prayers. I do also have the VNS implant as you might have read, and maybe that could be something for you to consider if you are not happy with your medications. Do keep in touch, I would love to know more about you and your blog. God bless you!

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