Friday, October 8, 2010

Wait... It isn't Monday? It feels like one.

Good afternoon everyone. Just a little update on everything. This week went downhill pretty fast. I think I'm entering that part of the cycle where I get really sick again, but who knows. I can only hope for better. I'm loving the new Felbatol... Mainly because itls not Vimpat. I still have trouble walking after a dose of my meds but I'm not falling and bruising up my whole body. My loss of vision has turned into blurry vison so that is also a small plus. The weight loss is nice too. I definitely do not mind that! Now every rose has it's thorns... I cannot sleep worth a darn! 3 hours a night is all I have been able to salvage and itls wearing me down. I can't tell if it's the Felbatol or the VNS or the anxiety.... Maybe all three. I've been trying Melatonin supplement which worked like magic at first. Now it just completely wore off. I look like the walking dead, literally. My brother thought I was a ghost this morning! The vomiting is also a concern of mine because it is all too constant. The mere thought of food against my tongue makes me gag. My anxiety has just taken me over and I feel like I need to break some dishes or buy a punching bag. I can just feel it building up again like it used to. When seizures are near I get stressed, but when I get stressed seizures are near. Only God knows what to do. I pray no Grand Mals are coming my way. I simply can't handle it. I am now on homebound schooling, yet I am behind 2 weeks worth of work. Blegh. I just want to run away to France and stay there forever! Anyway, I am rambling on. Notice my post is just one big badly written paragraph. It's hard to write like this. I choose to write at times like these because it's the real deal. I actually feel a panic attack coming on so I'm going to log off and blog in a few days when I am feeling better again.

- Mandy Krzywonski

2 comments:

  1. Mandy: Jen says she's so sorry you feel so bad.

    Sometimes drugs are the culprit. I have a friend (who had polio when she was nine; she's now 71) who was on so many medications, and she just felt worse and worse. Finally she said to heck with it, I'll either live or die, went off all the meds, and she's feeling much better! I don't know if you can/should/want to give up some of your meds and go more "natural," but I'm just telling you this for your information. I do hope SOMETHING makes you feel better!!
    Ann

    ReplyDelete
  2. Hi Amanda,

    Hope you will feel a lot better soon.

    ReplyDelete

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